Arrangement of residence before hospital discharge for children on home-invasive mechanical ventilation.

Children on long-term home mechanical ventilation are a growing population due to clinical and technological advances and the benefit for the child's quality of life. Invasive home ventilation is one of the most complex therapies offered in the home setting, requiring adequate home environment and appropriate equipment and supplies before discharge. The transition from hospital to home represents a vulnerable period that can be facilitated with an established transition plan with multidisciplinary team involvement. Readiness for home care is achieved when the patient is stable and has been transitioned from a critical care ventilator to a home mechanical ventilator. In parallel, comprehensive competency-based training regarding the knowledge and skills needed to help families use the equipment confidently and safely. Before discharge, families should be counseled on an adequate home environment to ensure a safe transition. The residence arrangement may include physical space modifications, verifying electrical installation, or moving to another home. Durable medical equipment and supplies must be ordered, and community healthcare support arranged. Parents should receive practical advice on setting up the equipment at home and on preventive measures to minimize complications related to tracheostomy and ventilator dependence, including regular maintenance and replacement of necessary equipment. Given the overall impact of invasive ventilation on home life, a structured home care action package is essential to alleviate the burdens involved.

Torrent-Vernetta A ，Soriano MM ，Iglesias Serrano I ，Izquierdo AD ，Rovira Amigo S ，Messa IM ，Gartner S ，Moreno-Galdó A ... -  《-》

Daily living with distress and enrichment: the moral experience of families with ventilator-assisted children at home.

Carnevale FA ，Alexander E ，Davis M ，Rennick J ，Troini R ... -  《-》

Caregiver education before hospital discharge for children on home-invasive mechanical ventilation.

Zirek F ，Çobanoğlu N 《-》

Preparing families to care for ventilated infants at home.

Advances in neonatal care have led to increased survival of infants with complex medical needs and technology dependence. Transition of the ventilator-dependent infant from hospital to home is a complex process that requires extensive coordination between the medical team and family. Home caregivers must be prepared to provide routine care for the ventilator-dependent child and respond to life-threatening emergencies. Families should be counseled on the need for home nursing, medical equipment and an adequate home environment to ensure a safe transition to home. Throughout the process, the family may require financial, social and psychological support. A structured education and transition process that is clearly communicated to parents is necessary to have an effective partnership with families.

Benscoter D ，Borschuk A ，Hart C ，Voos K ... -  《-》

Discharge Practices for Children with Home Mechanical Ventilation across the United States. Key-Informant Perspectives.

Sobotka SA ，Dholakia A ，Agrawal RK ，Berry JG ，Brenner M ，Graham RJ ，Goodman DM ... -  《-》