Preparing families to care for ventilated infants at home.

Advances in neonatal care have led to increased survival of infants with complex medical needs and technology dependence. Transition of the ventilator-dependent infant from hospital to home is a complex process that requires extensive coordination between the medical team and family. Home caregivers must be prepared to provide routine care for the ventilator-dependent child and respond to life-threatening emergencies. Families should be counseled on the need for home nursing, medical equipment and an adequate home environment to ensure a safe transition to home. Throughout the process, the family may require financial, social and psychological support. A structured education and transition process that is clearly communicated to parents is necessary to have an effective partnership with families.

Benscoter D ，Borschuk A ，Hart C ，Voos K ... -  《-》

Transitioning from an ICU ventilator to a portable home ventilator.

There is a variety of portable ventilators on the market, each with its' own features. A clinician needs to understand the unique characteristics of the ventilators available in his or her region, as well as the nuances of primary and secondary settings for these portable home ventilators in order to create a comfortable breath that allows for adequate gas exchange for the patient. Understanding the interplay of the portable home ventilator and the ventilator circuit is also a key component of transitioning a patient to a portable home ventilator. This review details characteristics of some of the more commonly used machines in the United States, as well as the settings to be considered in supporting a child with chronic respiratory failure outside of the hospital. As more patients are being discharged from the hospital with mechanical home ventilation, new ventilators are being developed that expand upon features of current machines.

Fierro JL ，Panitch HB 《-》

Daily living with distress and enrichment: the moral experience of families with ventilator-assisted children at home.

Carnevale FA ，Alexander E ，Davis M ，Rennick J ，Troini R ... -  《-》

Infants With Technology Dependence: Facilitating the Road to Home.

Bowles JD ，Jnah AJ ，Newberry DM ，Hubbard CA ，Roberston T ... -  《-》

Tracheostomy in infants: parent education for home care.

Joseph RA 《-》