[The transitional care from pediatrics to adult medicine within the rare autoimmune and autoinflammatory diseases network].

The committee involved in transitional care within the French network on rare autoimmune and auto-inflammatory diseases has developed tools and published recommendations for the care during the transition of adolescents and young adults suffering from these chronic diseases which often demonstrate flares. As the challenge is the compliance to the continuation of care in the adult world, the therapeutic alliance between the young patient and his/her pediatrician and then his/her adult doctor is particularly important. The working group thus carried out a survey on how doctors and young patients perceive their relationship during the period of transition in medical supervision.

Herasse M ，Romier M ，Hentgen V ，Duquesne A ，Larbre JP ，Maillard H ，Pha M ，Pillet P ，Reumaux H ，Truchetet ME ，Georgin-Lavialle S ，Belot A ... -  《-》

[Transition from pediatric to adult care: Recommendations of the French network for autoimmune and autoinflammatory diseases (FAI(2)R)].

Autoimmune and autoinflammatory diseases (AIDs) are a heterogeneous group of diseases. They can occur in childhood and account for significant morbidity and mortality. Transitioning from pediatric to adult healthcare can be difficult for patients and their families. It can interfere with patient follow-up and management, and eventually lead to complications. Although recommendations exist for the successful transition of patients with chronic diseases, few are specifically adapted to children and adults with AIDs (Suris et al., 2015-Solau-Gervais, 2012). The French working group on transition of the rare autoimmune and autoinflammatory diseases presents its reflections and recommendations for a successful transition. Preparation for transition should start early. Its goals are to empower adolescents by providing them with the knowledge to manage their own care, respond appropriately to changes in their condition, and evolve within the adult healthcare system. This requires the active participation of the patient, his or her family, as well as the pediatric and adult medical teams. The transition process involves multidisciplinary care and dedicated therapeutic education programs. Finally, the identification of medical specialists by region, trained in rare AIDs and accompanied by expert patients, may improve the management of patients with rare AIDs from adolescence to adulthood.

Georgin-Lavialle S ，Hentgen V ，Truchetet ME ，Romier M ，Hérasse M ，Maillard H ，Pha M ，Pillet P ，Reumaux H ，Duquesne A ，Larbre JP ，Belot A ... -  《-》

Resident Dyads Providing Transition Care to Adolescents and Young Adults With Chronic Illnesses and Neurodevelopmental Disabilities.

Chung RJ ，Jasien J ，Maslow GR 《-》

Current practice of transitional care for adolescents and young adults in Swiss paediatric and adult rheumatology centres.

Berben L ，Sigg N ，Daly ML ，Bachmann S ，Baer W ，Berthet G ，Bolt I ，Dan D ，Enderlin Steiger S ，Fröhlich J ，Hasler P ，Hofer M ，Huemer C ，Kaiser D ，Marcoli N ，Palmer Sarott S ，Rottländer Y ，Schmid G ，Soennichsen C ，Strahm Furler L ，Vanoni F ，Wildi L ，Daikeler T ，Woerner A ... -  《-》

Transition to Adult Care in Autoinflammatory Diseases: A Cohort of 111 French Patients.

Transitioning from pediatric to adult care is a critical step for individuals with autoinflammatory diseases, requiring effective programs to ensure continuity of care and disease management. Despite various recommendations, the effectiveness of transition programs, particularly in monogenic autoinflammatory diseases, remains understudied. A single-center medical records review study was conducted at the French National Reference Center for Adult Autoinflammatory Diseases in Tenon Hospital from 2017 to 2023. All patients who had consulted for the first time between the ages of 15 and 30 years and had received care for an autoinflammatory disease during childhood were included. The patients were classified according to whether they had undergone a transition, defined as either no transition, simple transition (referral letter), or joint transition (pediatrician and adult physician consultation). One hundred eleven patients (median age, 18 years) were included. Patients who consulted without transition started adult follow-up and were followed up less regularly than those who underwent the transition process ( p < 0.001 and p = 0.028). In patients with familial Mediterranean fever, the absence of a formal transition was associated with poorer disease control at baseline ( p = 0.019). The type of transition did not impact disease control during follow-up. Participation in a transition program is associated with earlier and more regular follow-up in adulthood. Although transition type did not significantly impact disease control during follow-up in familial Mediterranean fever, the potential benefit of joint consultation extends beyond consultation frequency and disease outcomes, encompassing patient perspectives and self-management abilities. This study highlights the significance of collaborative transition programs in AIDs.

Elhani I ，Hentgen V ，Quartier P ，Bader-Meunier B ，Kone-Paut I ，Neven B ，Rossi L ，Faye A ，Meinzer U ，Melki I ，Grateau G ，Savey L ，Georgin-Lavialle S ... -  《-》