Cancer diagnosis, treatment and care: A qualitative study of the experiences and health service use of Roma, Gypsies and Travellers.

Early diagnosis and treatment are key to reducing deaths from cancer, but people from Black and Minority Ethnic (BME) groups are more likely to encounter delays in entering the cancer care system. Roma, Gypsies and Travellers are ethnic minorities who experience extreme health inequalities. To explore the experiences of cancer diagnosis, treatment and care among people who self-identify as Roma or Gypsies and Travellers. A participatory qualitative approach was taken. Peer researchers conducted semi-structured interviews (n = 37) and one focus group (n = 4) with community members in Wales and England, UK. Cancer fatalism is declining, but Roma, Gypsies and Travellers experience barriers to cancer healthcare at service user, service provider and organisational levels. Communication was problematic for all groups, and Roma participants reported lack of access to interpreters within primary care. Clear communication and trusting relationships with health professionals are highly valued and most frequently found in tertiary care. This study suggests that Roma, Gypsies and Travellers are motivated to access health care for cancer diagnosis and treatment, but barriers experienced in primary care can prevent or delay access to diagnostic and treatment services. Organisational changes, plus increased cultural competence among health professionals, have the potential to reduce inequalities in early detection of cancer.

Condon L ，Curejova J ，Leeanne Morgan D ，Fenlon D ... -  《-》

Needles, Jabs and Jags: a qualitative exploration of barriers and facilitators to child and adult immunisation uptake among Gypsies, Travellers and Roma.

Jackson C ，Bedford H ，Cheater FM ，Condon L ，Emslie C ，Ireland L ，Kemsley P ，Kerr S ，Lewis HJ ，Mytton J ，Overend K ，Redsell S ，Richardson Z ，Shepherd C ，Smith L ，Dyson L ... -  《BMC PUBLIC HEALTH》

Knowledge and experience of cancer prevention and screening among Gypsies, Roma and Travellers: a participatory qualitative study.

Condon L ，Curejova J ，Morgan DL ，Miles G ，Fenlon D ... -  《BMC PUBLIC HEALTH》

UNderstanding uptake of Immunisations in TravellIng aNd Gypsy communities (UNITING): a qualitative interview study.

Jackson C ，Dyson L ，Bedford H ，Cheater FM ，Condon L ，Crocker A ，Emslie C ，Ireland L ，Kemsley P ，Kerr S ，Lewis HJ ，Mytton J ，Overend K ，Redsell S ，Richardson Z ，Shepherd C ，Smith L ... -  《-》

A community approach to engaging Gypsy and Travellers' in cancer services.

While cancer outcomes in the UK have improved, inequalities remain with poorer and some ethnic minority populations experiencing lower survival rates. Research has addressed Gypsies' and Travellers' cancer-related beliefs, experiences and practices as part of wider studies but this is the first study in the UK to specifically focus on cancer. Findings suggest that health beliefs and practices are shaped by historical and contemporary social processes and the marginal position of Gypsies and Travellers in the UK society can result in a preference for seeking information and support from within the community. Starting from a health assets perspective, findings indicate that the structure of social relations in Gypsy and Traveller communities could be more widely utilized in health promotion programmes. Developing and extending techniques employed by Gypsy and Traveller Non-governmental Organisations such as community-based interventions and the use of lay health advisers, could be an effective method of health promotion by raising knowledge of cancer, engaging community members in preventative programmes and encouraging earlier access to services.

Smith D ，Newton P ，Berlin J ，Barrett S ... -  《-》